Caring for critically ill children in the glare of digital media

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Wednesday 1 May 2019

9.15am - 5.15pm

West Downs Quarter, Romsey Road, Winchester, SO22 5HT


This is the sixth Winchester Conference on Trust, Risk, Information and the Law #TRILCon19

This workshop explores the impact of social media on critically ill young children and their parents as well as professionals who work alongside them. It is of interest to a range of fields including, but not limited to, medicine, philosophy, law, sociology, anthropology, history, education, media and communication studies, medical humanities as well as those from the biomedical ethics community.


  • the difficult ethical implications which arise when a critically ill child is the subject of a social media campaign.
  • the impact of social media campaigns upon the care and privacy of critically ill young children.
  • the ethical questions surrounding the exposure of intimate details about a child’s health via social media
  • the impact on the privacy rights of the child.
  • the impact of social media on the confidence of parents in the ability of medical professionals
  • the role of social media in facilitating parents to explore treatment options abroad
  • the ‘moral distress’ of medical professionals
  • the public perception of the medical profession and the NHS
  • the competing rights of parents, children, the press, medical professionals and the NHS

 Full programme for the day can be found below.



Claire Bessant, Associate Professor in Law at Northumbria University.

Liam Berriman, Lecturer in Childhood & Youth Studies, University of Sussex.

Jo Bridgeman, Professor of Healthcare Law & Feminist Ethics, University of Sussex.

Peta Coulson-Smith, Senior Teaching Fellow in Clinical Ethics and Law, University of Southampton.

Malcolm Dowden, Legal Director at Womble Bond Dickinson (UK) LLP

Mark Gleeson, Partner in Data and Privacy team at Womble Bond Dickinson (UK) LLP

Katie Gollop QC, Barrister, Sergeant’s Inn.

Victoria Jaynes, Research Fellow in Digital Sociology/Humanities, University of Sussex.

Stephanie Nimmo, award-winnng writer, freelance journalist, marketing consultant, trainer, public speaker and campaigner.

Emma Nottingham, Senior Lecturer in Child Law and Medical Ethics, University of Winchester.

Helen Ryan, Senior Lecturer in Medical Law, University of Winchester.

Robert Wheeler, University Hospital Southampton.

Peter Wilson, University Hospital Southampton.



Nurses/AHP/students - £40

Doctors/Academics/lawyers/other - £60

There are a small number of free places available for those with no access to funds.  Email for details.

If you requre further information, please email



9.00am       Registration, coffee  
9.30am     Welcome and introduction    Emma Nottingham
9.40am     Thirty years of cases concerning critically    Jo Bridgeman
      ill children: from privacy to public interest  
10.00am     The pros, cons and pressures of resolving     Katie Gallop QC
      children's medical treatment disputes   
       under the meda spotlight  
10.20am      Impossible decisions     Rob Wheeler
11.10am     Parents as privacy guardians?    Claire Bessant
11.40am      Documenting and displaying family in a    Victoria Jaynes, Liam Berriman 
      digital age  
12.00      Generation tagged and the global    Helen Ryan 
      YouTube family  
1.30pm     Perspectives from practice: GDPR, privacy and    Mark Gleeson, Malcolm Dowden
      special catergory data  
2.00pm      Keynote: Was this in the plan? How difficult   Stephanie Nimmo
      conversatons helped me give my daughter a   
      good death  
3pm     Difficult decisions in paediatrics    Peta Coulson-Smith, Peter Wilson
3.30pm      The public life of critically ill children    Emma Nottingham
4pm     Roundtable discussion    All delegates
4.30pm     Feedback from roundtable discussions    All delegates
5.15pm     Close  


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